Who decides? Perspectives from key stakeholders in adolescent advance care planning
Advance care planning supports patient-centered decision-making by discussing goals, values, and preferences for future medical care. This process involves three key stakeholders: the patient, their surrogate decision-maker, and their clinicians. How do the stakeholder roles change when the patient is an adolescent who has the capacity but not the legal right to make medical decisions? Dr. Jennifer Needle, a Pediatric Intensive Care physician from the University of Minnesota Masonic Children's Hospital and faculty member in the Center for Bioethics, addresses this question from the perspectives of these stakeholders in the context of adolescent advance care planning. She reviews the literature on the benefits and barriers to effective advance care planning, discusses clinician, patient, and surrogate perspectives on medical decision-making in adolescent patients, and discusses future areas of research to support adolescent patients and their families in making informed medical decisions. This event was co-sponsored by the Department of Pediatrics in the University of Minnesota's Medical School.
Speaker: Jennifer Needle, MD, MPH | Assistant Professor, Center for Bioethics, University of Minnesota