EGR Past events
Prof. Gollust is an Associate Professor of Health Policy & Management at the University of Minnesota's School of Public Health where she examines how to effectively communicate public health issues to the public and policymakers. Prof. Gollust is also an affiliate faculty member of the Center for Bioethics.
This is an event of the Office of Academic Clinical Affairs (OACA) hosted by the Center for Bioethics and created in partnership by the following University of Minnesota units: the Masonic Cancer Center, the Division of Health Policy & Management in the School of Public Health, the Hubbard School of Journalism & Mass Communication, and the Women's Health Research Program.
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Speaker: Thaddeus Pope, JD, PhD, Director, Health Law Institute, Mitchell - Hamline School of Law; Affiliate Faculty Member, Center for Bioethics, University of Minnesota. Learn more about Professor Pope here.
Speaker: Chris Collura, MD, MA, Neonatology, Pediatric Palliative Care, Bioethics, Mayo Clinic Children’s Center
Advance care planning supports patient-centered decision-making by discussing goals, values, and preferences for future medical care. This process involves three key stakeholders: the patient, their surrogate decision-maker, and their clinicians. How do the stakeholder roles change when the patient is an adolescent who has the capacity but not the legal right to make medical decisions? Dr. Jennifer Needle, a Pediatric Intensive Care physician from the University of Minnesota Masonic Children's Hospital and faculty member in the Center for Bioethics, will address this question from the perspectives of these stakeholders in the context of adolescent advance care planning. She will review the literature on the benefits and barriers to effective advance care planning, discuss clinician, patient, and surrogate perspectives on medical decision-making in adolescent patients, and discuss future areas of research to support adolescent patients and their families in making informed medical decisions.
Speaker: Jennifer Needle, MD, MPH | Assistant Professor, Center for Bioethics, University of Minnesota
This event was co-sponsored by the Department of Pediatrics in the University of Minnesota's Medical School. No reservation required. Questions? Contact the coordinator at: firstname.lastname@example.org
Dr. Benya discussed the recent National Academies report that examines the effect of sexual harassment on women in scientific, technical, and medical fields in academia. Dr. Benya shared strategies and practices that can be used to prevent and address this discriminatory behavior, and discussed the research that supports these approaches.
Informed consent requires that research participants understand the study under consideration and appreciate its implications for their interests. Therapeutic misconception – which occurs when individuals confuse the purposes of clinical research with standard clinical care – compromises informed consent. Clinical Pediatrics Fellow Dr. Bryan A. Sisk of Washington University expands the discussions beyond therapeutic misconception in clinical trials by explaining multiple ways in which understanding and appreciation of information about a clinical trial can be undermined. He offers a framework of therapeutic misperceptions to assist researchers in managing challenges to the informed consent process. By the end of this talk, attendees will be able to do the following:
1. Identify two components of decisional capacity
2. Discuss challenges of therapeutic misperceptions in the clinic-research setting
3. Explore a framework of therapeutic misperceptions
This activity was designed for physicians and other healthcare professionals.
Speaker: Andrew Jameton, PhD
Affiliate Faculty, Center for Bioethics, UMN; Professor Emeritus, College of Public Health University of Nebraska Medical Center
The background to justice in bioethics revolves around fair access to costly health care resources. Meanwhile, social movements emphasize economic, racial, and identity inequalities within the United States. The demands of climate change add conceptions of justice: environmental justice, intra-specific justice, global inequality, differential responsibility for climate change, and generational justice. How are we to sort out these different emphases? Meanwhile, the rate of climate change is accelerating, and 27 years of negotiations has yielded no actual reduction in global greenhouse gas emissions. While we argue, inevitable misery is mounting up unjustly for young people and future generations.
The Girl with the DNR Tattoo
Presented by: Nneka Sederstrom, PhD, MPH, MA, FCCP, FCCM
Director, Clinical Ethics Department, Children's Hospital and Clinics of Minnesota and Affiliate Faculty, Center for Bioethics
What truly is a patient's right to self-determine? Can an advance directive take any form? This talk will look at the complexities of autonomous decision making and end of life through the eyes of a young adult expressing her wishes in the form of a tattoo.
2-690 Moos Tower, U of M East Bank Campus
Vector-Borne Diseases and Gene Drive
Speaker: Jerome Singh, BA, LLB, LLM, PhD, MHSc, Nelson R. Mandela School of Medicine, University of KwaZulu-Natal (UKZN); Joint Center for Bioethics, University of Toronto
Prof. Singh provides Ethical, Legal, Social Issues (ELSI) support to the Gates Foundation and its partners on gene drive research and its applications. In short, using a promising new technology called CRISPR/Cas9 to do targeted genome editing on mosquitos so that they produce male offspring (thus driving the species to extinction and, in the process, eliminating the spread of a disease), scientists will soon be field-testing these GM mosquitos in various settings. As you can imagine, this technology raises several ELSI issues
- Do we have the moral right to alter ecosystems?
- How do we deal with non-consensual communities or individuals in a field trial context, how do we engage with communities regarding this technology?
- How do deal with reparations if a field trial goes wrong, etc.